What Happens to Special Needs Adults When Parents Die?

Do you know a special needs adult living with elderly parents? Is this person your brother or sister? If so, has your family openly and frequently discussed plans for the special needs adult who may outlive Mom and Dad, and maybe you?

 If so, your family is ahead of most.

Facts

  • Special needs is a term used to describe those who require extra support because of a medical, emotional, behavioral or learning disability or impairment.
  • The number of adults with Intellectual and Developmental Disabilities (I/DD) is projected to nearly double from 641,860 in 2000 to 1.2 million by 2030 1/
  • As of 2006, more than 716,00 adults with developmental disabilities were living with caregivers over the age of 60 in the United States.
  • Whether it’s medical, financial understanding or living arrangements, Craft LifeStyle Management can help guide families with special needs adults, especially those living with aging parents or those whose parents have deceased. We have years of experience helping families get the resources needed during this transition.

Living with You

You love your sibling with disabilities. In fact, the plan is that he or she will live with you after Mom and Dad die. Have you considered:

  • Has your disabled sibling been to your home many times so that he or she is familiar with the surroundings, or do you live in another geographical location?
  • How your existing family routine will be altered as you fit in the tasks and responsibilities of care for your disabled sibling? Are you fully aware of what Mom and Dad have been doing all these years to care for your brother or sister? What was their routine? Was it completely transparent and now understood by you?
  • What happens to your sibling if you become ill, disabled or lose your life?
  • How will care be provided and paid for?
  • Who will attend medical appointments and manage the financial and legal aspects of care?

Again, Craft LifeStyle Management can assist you in fully understanding the complexities of what’s involved in caring for your loved one with special needs.

In the meantime, set up a time as soon as possible to talk to your parents so that you are not left without critical information after a crisis.

The smallest details matter while caring for those with special needs.

This link http://www.talk-early-talk-often.com/special-needs-adult.html provides an excellent list of questions and conversations so that you and your family are prepared for the well-being of your sister or brother. Record these conversations on paper or a computer file. Let other loved ones know where this information is since you may not be the only one that needs to access it.

Loving Choice

Everyone needs to be realistic about caring for your loved one with special needs. As parents age, they may have ongoing health challenges making it difficult to consistently care for your special needs brother or sister.

Perhaps, now, the most loving thing your family can do is find a group, assisted living or nursing home for your brother or sister.

If this is the decision, please consider transitioning your special needs sibling to this home before a parent dies. It will help ease the transition to a new home environment, which makes for one less loss after death.

Legal Protections & Financial Implications

Craft LifeStyle Management ensures you have formal legal documents and protection in place for caring for your brother or sister. We help you understand the financial implications of this care.

We surround ourselves with highly qualified and trained professionals who specialize in special needs life-care planning.

We will sit side-by-side with you while subjects like this are discussed with you:

  • Special Needs or Supplemental Needs Trusts
  • Pour-Over Will
  • Last-to-Die Life Insurance Policies
  • Powers of Attorney for Healthcare and Property
  • Power of Attorney for Advocacy
  • Medicaid Gifting Powers
  • Guardianship Documents
  • Letter of Intent or Direction

Please contact Craft LifeStyle Management for assistance with making informed decisions regarding the special needs adults in your life. http://craftlifestylemgt.com/contact/

Reference     
1. Heller T. People with intellectual and developmental disabilities growing old: an overview. Impact. 2010;23(1).

More Information

https://ici.umn.edu/products/impact/231/default.html

Written by Linda Leier Thomason for Craft LifeStyle Management.

© September 2020. Craft LifeStyle Management. All Rights Reserved.

Denise Craft founded Craft Lifestyle Management in 1988 to ease the burden for families of aging, veterans, special needs adults and those in rehab during times of transition. She understands what’s involved in transitioning any individual from their personal home to their next home and to the end of life. Her seasoned knowledge of available placement services, housing options, eligible benefits and payor sources, and community resources is endless. 

Home Modifications to Age in Place

More seniors are choosing to age in place than ever before. This is partly due to long-term care costs. In addition, the Baby Boomer generation has been privileged to have a more active lifestyle than generations before them, allowing greater health in older years.

Technology and availability of more services, like home care, are also making it easier for older adults to independently remain in their own homes.

Definition

Home modification means materially changing a senior’s home to make it easier for them to safely move around. It also involves removing potential hazards to support independent living.

Falls, often resulting in broken bones, are the #1 reason seniors lose their mobility, thus their independence.

To avoid this, home modifications, supporting aging in place, typically address three areas.

• Safety

• Accessibility

• Convenience

Help is Available

Craft Lifestyle Management and Craft Homes http://craftlifestylemgt.com/craft-homes/, supported by a team of professionals like occupational therapists, have years of experience with home modifications.

We can assist you, or a family member, in creating a safe space for those choosing to age in place.

We will walk through the home with you and make suggested modifications.

We’ll also introduce you to products and services that will make you and your loved ones feel safer in the home while aging in place.

Our Craft Homes team can make the physical upgrades on your schedule and within your budget.

BONUS: Peace of Mind-Family members who cannot be with their aging loved ones all the time can have peace of mind knowing these modifications will create a safer place for their aging family member.

Basic Modifications

You Can Do

Clear Excess In Rooms

Remember, falling is the #1 reason seniors lose their independence.

Ensure each room, including the front door entryway, has plenty of space to maneuver around, especially if your loved one relies on a mobility aid like a cane, walker or wheelchair.

Remove unnecessary furniture. Clear pathways and hallways. Leave plenty of space to move around without bumping into anything.

Remove or Fix Trip Hazards

Rugs beautify space; however, they often are trip hazards. Remove area and other floor rugs or secure them to the floor to avoid slips and falls.

Are there extension cords running across floors? Find another way. Cords are definite trip hazards.

Level uneven areas of flooring throughout the home. Minimize height differences between flooring types to avoid tripping hazards. NOTE:1/8” or more is a trip hazard.

Assess Lighting

Not enough light can increase tripping, thus falls. Too much light creates glare. Make sure the home is well lit, always.

By age 75, most people require twice as much light as the normal recommended standard, and nearly four times as much as a 20-year-old, to see satisfactorily (Dementia Services Development Center – The Importance of Lighting).

Consider putting nightlights in hallways and in bathrooms. Use table or floor lamps in sitting areas and put adhesive countertop lights under cabinets.

NOTE: Changing light bulbs is often risky for seniors. To avoid having to change lights frequently, switch all lights to LED bulbs. Most are rated up to 50,000 hours.  

Raise the Toilet Seat

Low toilet seats are a major hazard for falls. Install a raised toilet seat with handles and/or grab bars next to the toilet.

Change the Shower Head

Install a handheld shower head. These are easier to use while seated or while holding on to a grab bar.

NOTE: Craft Homes can help you install grab bars and other safety equipment and tools to avoid slips and falls.  If someone in your family does the installation, for your safety, make sure the grab bar holds up to 250 pounds or more and that it is installed by screwing it into wall studs, not just the sheetrock.

Replace Door Knobs

Arthritis or other conditions that limit motion make using round doorknobs challenging. Replace these with lever-style ones, which are much easier to grip since they don’t require a twisting motion.

More Involved Modifications

Contact Craft LifeStyle Management for an In-Home Assessment

Remember any modification that ensures safety and helps you or your loved one live independently for as long as possible is well worth considering.

Craft LifeStyle Management will work with your time schedule and budget. We will schedule a convenient in-home assessment and begin any modification work when you are ready.

Contact Us. http://craftlifestylemgt.com/contact/

Widen Doorways

Doorways must be at least 32” wide for a wheelchair to move easily through it but 36” wide to accommodate a turn, like from a hallway into a room.

In addition to the actual widening construction, sometimes light switches and electric wires must be moved.

Pocket doors may be recommended instead. Using pocket doors has two advantages: doors are no longer in the way when open and wheelchairs don’t get caught on hinges.

NOTE: Sometimes just flipping a door to open to the other side is all that’s needed. Every option to create accessibility and contain cost will be explored with you.

Adjust Kitchen Countertops

Regular countertops stand about 34 inches off the floor. Adjusting countertops to 30 inches makes it easier for someone in a wheelchair or scooter to enjoy daily activities like cooking.

Cabinetry with pull out drawers is a real bonus for those wanting to enjoy working in their kitchen longer.

NOTE: Simply lowering a microwave makes a huge difference for independence.

Install Slip-Resistant Flooring

Choose flooring that is soft so bones are less likely to be broken if a fall happens. Also consider installing flooring that is easy to clean and stays clean.

While hard surfaces like wood and stone floors are easier to clean and more sanitary, they have less traction and are just that-hard. Carpet is softer and warmer and provides more cushion if there’s a fall. Yet carpet is more challenging for mobility aids like walkers and wheelchairs.

Engineered vinyl planks may be an ideal option for those wanting a hard surface. They are both easy to clean and hold up well to liquid spills. This flooring looks and feels like hardwood floors. They also have texture so they’re less slippery than real hardwood floors.

NOTE: If you don’t want to replace bathroom tile that’s in great shape, buy ADA approved anti-slip coating and roll it on with a paint roller.

Build a Wheelchair Ramp

If the home is not zero entry, meaning it has zero steps and a minimal threshold, you may need to have a wheelchair ramp built and installed.

The most obvious use of the ramp is for wheelchair accessibility but ramps also eliminate the need to navigate steps, which is often difficult for those with balance issues.

If the home is zero entry, ensure there is a covered entryway to protect you from snow and rain. Regularly have your drainage systems checked. Don’t allow rain to puddle or ice to form by the entryway.

Change Faucets

Replace twist faucet handles with levers. Or, install touchless faucets on the kitchen and bathroom sinks for those with arthritis or other grip issues.

Install anti-scald faucets in the bathtub or shower. These prevent sudden bursts of hot water when cold water is diverted due to a toilet being flushed or the washing machine being filled.

NOTE: A simpler way to avoid scalding is to lower the water heater temperature to 120 degrees or less. 

Replace the Bathtub

A walk-in shower provides much easier and a safer entry than a bathtub. It makes showering independently possible.

If space or budget don’t allow for a walk-in shower, definitely have a safety bar added to the tub and install safety strips.

You can also purchase a bathtub transfer bench. https://makedisabilityeasier.com/how-to-use-a-transfer-bench-for-the-bathtub-and-shower or use a bathtub chair. Transfer benches are safe and affordable and highly recommended.

A walk-in or siting tub option is also available, though much more costly. These serve as a stand-up or sit-down shower as well as a deep soaking tub.

Move the Bedroom

The bedroom should be on the main floor of the house.

Craft Homes can definitely help you redesign your space to make this happen.

Contact Us. http://craftlifestylemgt.com/craft-homes/

NOTE: Alternatively, you may want to install a chair lift or elevator.

More Information

Written by Linda Leier Thomason for Craft LifeStyle Management.

© August 2020. Craft LifeStyle Management. All Rights Reserved.

Denise Craft founded Craft Lifestyle Management in 1988 to ease the burden for families of aging, veterans, special needs adults and those in rehab during times of transition. She understands what’s involved in transitioning any individual from their personal home to their next home and to the end of life. Her seasoned knowledge of available placement services, housing options, eligible benefits and payor sources, and community resources is endless. 

Please contact Craft LifeStyle Management for all of your transitional needs.

Greg Craft founded Craft Homes in 1980. Since then, he’s been involved in home building, redesign and modification.

Contact Craft Homes at PHONE: 402.578.5911 or Crafthomes.greg@gmail.com or denise@craftlifestylemgt.com